{"id":20299,"date":"2022-06-29T20:39:19","date_gmt":"2022-06-29T20:39:19","guid":{"rendered":"https:\/\/updates-www.mccdn.io\/vitals\/?p=20299"},"modified":"2024-08-05T16:47:01","modified_gmt":"2024-08-05T16:47:01","slug":"life-as-a-long-hauler-the-burden-of-long-covid","status":"publish","type":"post","link":"https:\/\/updates-www.mccdn.io\/vitals\/life-as-a-long-hauler-the-burden-of-long-covid\/","title":{"rendered":"Life as a \u2018long-hauler\u2019: The burden of long COVID","gt_translate_keys":[{"key":"rendered","format":"text"}]},"content":{"rendered":"

On the surface, 44-year-old Jamie Vinyard and 72-year-old Marilyn Pitini may not seem like they have much in common. Vinyard is a certified medical assistant in neurosurgery at MultiCare who, until the fall of 2021, spent her free time moonlighting at a dude ranch. Pitini is a retired mental health therapist who enjoys travelling with her family and tending to her garden.<\/p>\n

What the two women share: lives upended by COVID-19.<\/p>\n

Vinyard and Pitini are among the estimated millions around the world living with long COVID-19<\/a> \u2014 people, sometimes referred to as \u201clong-haulers,\u201d who experience lingering health problems following their initial infection. Long COVID symptoms are wide-ranging, and for many they are debilitating.<\/p>\n

\u201cIt\u2019s been almost a year since I first got infected, yet there are still days where I can\u2019t do anything but lay in bed,\u201d Vinyard says. \u201cSometimes I have a hard time seeing the light at the end of the tunnel.\u201d<\/p>\n

In the first of this two-part series, find out what we know about long COVID, who\u2019s at risk and how it\u2019s affecting people.<\/p>\n

When COVID struck<\/h2>\n

Both Vinyard and Pitini\u2019s experiences with COVID began in 2021. Vinyard was sharing a meal with friends one Friday evening when her head started pounding. The headache was so excruciating that she left dinner early. Within 24 hours, she had a fever. Her whole body ached. Her chest burned and she couldn\u2019t stop coughing. Her symptoms were so severe that she visited the emergency department three times over the course of three weeks.<\/p>\n

\u201cThe virus was attacking pretty much every organ I had, from my lungs to my kidneys,\u201d Vinyard says. \u201cI ended up being out of work for over a month.\u201d<\/p>\n

Similar to Vinyard, Pitini first realized something was amiss when she experienced a throbbing pain, but in her back rather than her head.<\/p>\n

\u201cI felt like I had been carrying around 500-pound bags, and no amount of rest seemed to help,\u201d Pitini says.<\/p>\n

Pitini soon learned that not only did she have COVID, but the virus had also triggered pneumonia and led to blood clots in her lungs. Pitini spent 16 days recuperating in the hospital.<\/p>\n

While Pitini and Vinyard have recovered from their initial infections, they are still dealing with the long-term effects of COVID. Adding to that problem is the fact that there are more questions than answers about what qualifies as long COVID, why it happens and when people can expect symptoms to resolve.<\/p>\n

What we know about long COVID<\/h2>\n

According to the Centers for Disease Control and Prevention (CDC)<\/a>, a person may have long COVID if they are experiencing new or ongoing symptoms at least four weeks after their original infection. However, there isn\u2019t yet full consensus on this timeline. For example, the World Health Organization<\/a> starts the clock for long COVID at three months following the onset of infection.<\/p>\n

Diagnosing long COVID can also be tricky.<\/p>\n

\u201cThere isn\u2019t really one particular test that we can use to diagnose long COVID,\u201d says Mary Fairchok, MD, a pediatric infectious disease specialist at Mary Bridge Children\u2019s Hospital<\/a>.\u00a0 \u201cAlthough there are some inflammatory markers that can appear abnormal in a blood panel, diagnosing long COVID is more about a process of exclusion \u2014 first ruling out other possibilities and putting the picture together from there.\u201d<\/p>\n

To understand why long COVID symptoms occur, it can be helpful to divide them into three categories. The first category includes symptoms that are a result of damage sustained to the body \u2014 for example, where the virus has attacked the heart, kidneys, lungs or other organs.<\/p>\n

The second category includes symptoms related to the effects of hospitalization.<\/p>\n

\u201cIt can take weeks for a patient who was hospitalized with COVID to recover,\u201d says Ben Arthurs, MD, a pulmonary and critical care physician at MultiCare Rockwood Clinic. \u201cAnd for patients in the intensive care unit, we commonly tell them that the expected recovery period is two or three times the duration of their hospital stay.\u201d<\/p>\n

The third category of long COVID symptoms is both the least understood and the most troubling.<\/p>\n

\u201cThis group includes people who had mild to moderate COVID-19 infections, were never hospitalized and yet go on to experience long COVID symptoms, and no one really understands why,\u201d Dr. Fairchok says.<\/p>\n

Dr. Arthurs receives referrals for patients who experience persistent respiratory symptoms from COVID-19, and sometimes they fall into this mysterious third group.<\/p>\n

\u201cI see people who report shortness of breath and fatigue, yet their X-rays and breathing function tests don\u2019t reveal anything abnormal,\u201d he says. \u201cThese are the tough ones, and we don\u2019t have a great explanation as to why these symptoms are happening.\u201d<\/p>\n

Researchers are still trying to understand who may be most at risk for long COVID, yet preliminary studies show that some people are more likely to develop long COVID than others.<\/p>\n

\u201cIt seems to be more common in those who were severely sick with COVID and those who lost their sense of taste or smell during their initial infection,\u201d Dr. Fairchok says. \u201cAdvanced age is a risk factor, and it does seem to be affecting women more than men<\/a>.\u201d<\/p>\n

As for the symptoms associated with long COVID, the list includes fatigue, shortness of breath, headaches, fever, gastrointestinal issues, heart palpitations, muscle pains, memory problems and many more. In fact, one study published in the Lancet identified 203 different symptoms associated with long COVID<\/a> spanning 10 organ systems throughout the body.<\/p>\n

The new normal<\/h2>\n

Nearly a year after being diagnosed with COVID-19, Vinyard is plagued with many of these symptoms. She experiences recurrent ocular migraines and dizziness. She has difficulty hearing out of her right ear. Pain shoots through her legs and feet. Her heart races with minimal exertion, and she struggles with exhaustion and breathlessness on a daily basis.<\/p>\n

Despite seeing multiple specialists and undergoing a number of diagnostic tests, solutions are scarce \u2014 there\u2019s no one-size-fits all treatment available for long COVID.<\/p>\n

In some cases, medications, pulmonary rehabilitation or physical or occupational therapy can help. Vaccines may also play a role.<\/p>\n

\u201cThere have been reports that getting an mRNA vaccine can alleviate some long COVID symptoms<\/a> for those who are unvaccinated, though it\u2019s not clear exactly why,\u201d says Dr. Arthurs. \u201cWhat\u2019s tough as a doctor is that sometimes there just is no easy fix. For some people, these symptoms are devastating \u2014 they can\u2019t exercise, they can\u2019t work. The quality-of-life implications are huge.\u201d<\/p>\n

For Vinyard, the abundance of unknowns surrounding her ongoing symptoms are a constant strain both mentally and physically.<\/p>\n

\u201cI know what I was capable of a year ago,\u201d she says. \u201cI was a person who would wrap up my shift at the clinic and then drive three hours to work my second job at the dude ranch and think nothing of it. I don\u2019t have the strength, the energy or the breath to do that anymore. Just walking across the parking lot to get to work in the morning feels like running a marathon. There are a lot of days where I just feel awful, and I can\u2019t explain why.\u201d<\/p>\n

Like Vinyard, Pitini\u2019s path to recovery has not been smooth. For months after she was released from the hospital, she was on oxygen, and at one point she learned that her pneumonia had rebounded. While her breathing levels have now returned to normal and antibiotics vanquished the pneumonia, she still experiences backaches. And she finds that her stamina is not what it once was.<\/p>\n

\u201cI don\u2019t have the energy that I used to have,\u201d Pitini says. \u201cBefore all this, I could easily go out and work in my yard for hours, for several days in a row, but not now. I just keep trying to get back to normal, but it\u2019s hard to know what normal is anymore.\u201d<\/p>\n

What to do if you have long COVID symptoms<\/h2>\n

If you\u2019re concerned that you may have long COVID, don\u2019t dismiss your symptoms.<\/p>\n

\u201cVisiting a primary care provider is a good place to start,\u201d Dr. Fairchok says. \u201cSome long COVID symptoms can mimic other conditions like lupus or cancer, so it\u2019s important to get checked out. Long COVID can also take a toll on mental health \u2014 don\u2019t hesitate to seek support.\u201d<\/p>\n

While there is much we still don\u2019t know about long COVID, studies to better understand this condition are underway all over the world. In the next of this two-part series, learn about research that is taking place right here at MultiCare.<\/a><\/p>\n","protected":false,"gt_translate_keys":[{"key":"rendered","format":"html"}]},"excerpt":{"rendered":"

On the surface, 44-year-old Jamie Vinyard and 72-year-old Marilyn Pitini may not seem like they have much in common. Vinyard is a certified medical assistant in neurosurgery at MultiCare who, until the fall of 2021, spent her free time moonlighting at a dude ranch. Pitini is a retired mental health therapist who enjoys travelling with […]<\/p>\n","protected":false,"gt_translate_keys":[{"key":"rendered","format":"html"}]},"author":367,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[51,79],"tags":[],"class_list":["post-20299","post","type-post","status-publish","format-standard","hentry","category-covid-19","category-profiles-stories"],"acf":[],"yoast_head":"\nLife as a \u2018long-hauler\u2019: The burden of long COVID - MultiCare Vitals<\/title>\n<meta name=\"description\" content=\"Read the stories of COVID "long-haulers", Jamie Vinyard and Marilyn Pitini and how it has affected their lives.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/updates-www.mccdn.io\/vitals\/life-as-a-long-hauler-the-burden-of-long-covid\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Life as a \u2018long-hauler\u2019: The burden of long COVID - 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