{"id":5343,"date":"2018-08-08T00:00:00","date_gmt":"2018-08-08T00:00:00","guid":{"rendered":"https:\/\/prd-www.mccdn.io\/vitals\/?p=5343"},"modified":"2021-10-19T22:05:15","modified_gmt":"2021-10-19T22:05:15","slug":"12-year-old-volleyball-whiz-spikes-arthritis","status":"publish","type":"post","link":"https:\/\/updates-www.mccdn.io\/vitals\/12-year-old-volleyball-whiz-spikes-arthritis\/","title":{"rendered":"12-year-old volleyball whiz spikes arthritis","gt_translate_keys":[{"key":"rendered","format":"text"}]},"content":{"rendered":"<p><strong>By Jean Jackman<\/strong><\/p>\n<p>The last thing 12-year-old Anna Saldana wants is to be singled out or treated differently from anyone else. But she willingly shares her story about battling a rare form of juvenile arthritis so she can help others.<\/p>\n<p>\u201cIt was really scary at first,\u201d she says.<\/p>\n<p>A competitive athlete, the seventh grader plays volleyball and basketball and runs track. When she began experiencing sore, swollen joints in her fingers a few years ago, she and her parents weren\u2019t sure what was going on.<\/p>\n<p>\u201cFirst it was her hands,\u201d says Anna\u2019s mother, Jenny Saldana. \u201cWe went to see a hand specialist and we were keeping an eye on things. Then we noticed more of her fingers and her toes and her jaw were getting swollen and stiff. We tried icing and splinting, but her pain was getting worse.\u201d<\/p>\n<p>At its worst, says Anna, \u201cIt hurt my fingers so much it was difficult to move them or to squeeze anything, like a shampoo bottle.\u201d<\/p>\n<p>The family consulted Sheryl Boon, MD, a pediatric rheumatologist at Mary Bridge Children\u2019s Hospital in Tacoma. Dr. Boon diagnosed Anna with polyarticular juvenile arthritis, RH negative. Juvenile arthritis affects 300,000 children annually in the United States, according to the Arthritis Foundation, but only 25 percent of youth have this form of arthritis, which affects multiple joints in the body and is similar to adult rheumatoid arthritis.<\/p>\n<p>Although it was hard to hear the diagnosis, Anna was relieved to find out what was going on.<\/p>\n<p>\u201cI was like, thank God I finally know what it is,\u201d she says. \u201cBut part of me was wondering what\u2019s next?&#8221;<\/p>\n<p>What was next was a course of powerful medications with some nasty side effects.<\/p>\n<p>\u201cAnna powered through,\u201d says Jenny. \u201cShe\u2019s really tough. She didn\u2019t want to miss a day of school.\u201d<\/p>\n<p>Then Dr. Boon prescribed regular Enbrel\u00ae injections, which Anna insisted on learning to do herself. Enbrel\u00ae is used to treat five chronic diseases, including moderate to severe rheumatoid arthritis.<\/p>\n<p>\u201cShe explained everything to me, broke it all down,\u201d says Anna. \u201cI was determined to give myself the injections. I don\u2019t want to be a baby about it.\u201d<\/p>\n<p>\u201cDr. Boon is treating this very aggressively because Anna is still a child,\u201d says Jenny. \u201cShe is wonderful, brilliant. She explains everything in a way we can understand.\u201d<\/p>\n<p>Over time, the injection frequency will decrease and the need for this medicine may go away altogether. Anna is feeling better and Jenny is confident she will have remission soon, either \u201cmedicated remission,\u201d or full remission without medication.<\/p>\n<p>What would Jenny tell other parents going through this?<\/p>\n<p>\u201cThere is a community of people out there on Facebook, other parents. You can learn from them, get support. Ask questions. The people at Mary Bridge have been amazing. They have given us so much information.\u201d<\/p>\n<p>As for Anna, she offers this advice for other children with juvenile arthritis: \u201cKeep going. It gets better, I promise.\u201d<\/p>\n<hr \/>\n<p><a href=\"https:\/\/www.marybridge.org\/services\/rheumatology\/\">Learn more about Mary Bridge Pediatric Rheumatology<\/a><\/p>\n<hr \/>\n","protected":false,"gt_translate_keys":[{"key":"rendered","format":"html"}]},"excerpt":{"rendered":"<p>Anna willingly shares her story about battling a rare form of juvenile arthritis so she can help others.<\/p>\n","protected":false,"gt_translate_keys":[{"key":"rendered","format":"html"}]},"author":91,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[67,79],"tags":[],"class_list":["post-5343","post","type-post","status-publish","format-standard","hentry","category-kids-health","category-profiles-stories"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO Premium plugin v27.6 (Yoast SEO v27.6) - https:\/\/yoast.com\/product\/yoast-seo-premium-wordpress\/ -->\n<title>12-year-old volleyball whiz spikes arthritis - 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